A British Columbia model and actor has pioneered a support network for individuals with vitiligo, offering a platform for sharing experiences and fostering community.
Vitiligo, a condition marked by the loss of skin pigment in patches due to malfunctioning or dead melanin-producing cells, affects approximately 0.5 to 2 percent of the global population, according to the Canadian Dermatology Association.
Omar Sharife, speaking to CTV News, highlighted the unique challenges faced by those with vitiligo, especially in the absence of a supportive community.
“It’s a condition that fundamentally alters your identity,” Sharife explained. “It brings a host of mental health challenges when your established identity and skin color change beyond your control.”
Sharife’s journey towards self-acceptance has been bolstered by connecting with others who share his condition. This led to the creation of Vitiligo Voices Canada earlier this year, the nation’s first support group dedicated to vitiligo.
“There are several excellent support groups in the U.S., but Canada has been lacking in this type of support and connection,” Sharife noted.
Vitiligo Voices Canada organizes regular virtual drop-ins for individuals to share their stories and experiences. In recognition of Vitiligo Awareness Month in June, the group has been actively sharing personal stories on social media to raise awareness.
“It’s incredible how much support it provides,” Sharife said. “For many, just speaking out loud about their experiences is a crucial part of their journey.”
Sharife emphasized that vitiligo affects each person differently—some may have a single spot, while others experience extensive skin changes. The condition can develop at any age, and individuals vary in their acceptance levels. “Everybody’s journey is different,” he remarked.
Sharife’s message to Canadians is one of sensitivity and awareness, encouraging them to recognize that everyone is at a different stage in their vitiligo journey. This is particularly poignant on Tuesday, June 25, World Vitiligo Day.
To mark the international awareness day, several landmarks, including BC Place, Science World, and the Vancouver Convention Centre, will be illuminated in purple. Additionally, Vancouver City Hall will display purple lighting on Wednesday.
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